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Organizations

The Alexander Graham Bell Association for the Deaf and Hard of Hearing (AG Bell) provides information, support and training to parents of children with hearing loss and the professionals who care for children with hearing loss. AG Bell promotes listening and spoken language. Parents can join the state chapter of AG Bell for free.

The American Academy of Audiology is the world's largest professional organization of audiologists and provides professional development, education, research and public awareness of hearing and balance disorders in adults and children.

The American Academy of Otolaryngology-Head & Neck Surgery (AAO-HNS) is the world's largest organization of specialists who treat the ear, nose, throat and related structures of the head and neck. This website includes a search feature for finding an otolaryngologist (also known as an ENT doctor) in your area.

The American Academy of Pediatrics (AAP) is a national organization of primary care pediatricians and pediatric specialists dedicated to the health, safety and well-being of children from infancy to young adulthood. The AAP provides member education, research, advocacy, policy and clinical guidance, publications, and community-based initiatives to improve the health of children.

The American Association of the Deaf-Blind (AADB) is a national consumer organization of, by, and for deaf-blind Americans, their families and their supporters.

The American Board of Audiology is an autonomous organization that is dedicated to enhancing audiologic services to the public by promulgating universally recognized standards in professional practice. The ABA encourages audiologists to exceed these prescribed standards, thereby promoting a high level of professional development and ethical practice. The ABA offers a pediatric audiology specialty certification.

The American Board of Medical Genetics is dedicated to the public and the medical profession by promoting and assuring standards of excellence in medical genetics. This website includes a search feature to find a certified geneticist in your area.

The American Society for Deaf Children supports and educates families of deaf and hard of hearing children and advocates for high-quality programs and services for these children. They promote full communication access in the home, school and community and believe that language development, respect for the Deaf, and access to deaf and hard of hearing role models are important to assure optimal intellectual, social and emotional development.

The American Speech-Language-Hearing Association (ASHA) is a professional association of audiologists, speech-language pathologists, and speech, language and hearing scientists. The ASHA website includes information for professionals as well as the general public. 

Beginnings for Parents of Children Who are Deaf or Hard of Hearing provides support and information in an impartial manner to parents of deaf and hard of hearing children and professionals. Information includes communication options, technology choices and school issues.  

The Boys Town National Research Hospital is internationally recognized for clinical service and research into the treatment of children who are deaf or hard or hearing.

Centers for Disease Control and Prevention (CDC) website on hearing loss in children. This website has a section for families with information and tools on hearing loss. It also includes a section for health professionals with tools and information on hearing loss including free educational materials to give to patients' families.

Hands & Voices Guide By Your Side of Pennsylvania (GBYS) is dedicated to supporting families and their infants and toddlers who are newly identified with hearing loss by offering them an opportunity to talk or meet face-to-face with a Parent Guide, a trained parent of a deaf/hard of hearing child, who can provide assistance using their personal experience and knowledge.

Information on hearing disorders and deafness from the Medline Plus - a service of the National Library of Medicine and the National Institutes of Health.

The Hearing Loss Association of America (HLAA) is the nation's leading organization representing people with hearing loss. HLAA provides assistance and resources for people with hearing loss and their families to learn how to adjust to living with hearing loss.

The Hearing, Speech and Deafness Center is based in Seattle, Washington and some of the information is specific to that area but there is plenty of good general information for parents of children who are deaf or hard of hearing. 

Help Kids Hear is a website created by parents of 2 hard of hearing children. It contains all kinds of information and resources that parents will find useful in raising their own deaf or hard of hearing children. Just keep in mind that some things may be dated since this website has not been updated recently.

The John Tracy Clinic provides free services to parents of children, ages birth to 5 years, who are deaf or hard of hearing. The clinic has more than 60 years of experience in early intervention and the spoken language option. Parent Distance Education courses are offered free of charge in English and Spanish.

The Joint Committee on Infant Hearing (JCIH) is composed of representatives from the American Academy of Pediatrics, the American Speech Language Hearing Association, the American Academy of Ototolaryngology and Head and Neck Surgery, the American Academy of Audiology, the Council on Education of the Deaf, and Directors of Speech and Hearing Programs in State Health and Welfare Agencies. JCIH makes recommendations on the early identification of children with or at risk for hearing loss as well as recommendations on universal newborn hearing screening. The most recent Position Statement was published in 2007 and can be found on the JCIH website along with all the previous Position Statements.

The NAD is the nation's premier civil rights organization of, by and for deaf and hard of hearing individuals in the U.S. Information on early intervention and on education can be found under \\\Issues and Resources\\\". Be sure to click \\\"Information for Parents\\\" on the far right of the Early Intervention and Education pages."

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