Hands and Voices Guide By Your Side of Pennsylvania (GBYS) is dedicated to supporting families and their infants and toddlers who are newly identified with hearing loss by offering them an opportunity to talk or meet face-to-face with a Parent Guide, a trained parent of a deaf/hard of hearing child, who can provide assistance using their personal experience and knowledge.
Parent support is provided to families of children who are deaf or hard of hearing by parents who have children who are deaf or hard of hearing. These parents know how to answer your questions, connect you to networks and find the resources you need because they have been there and know what you are going through!
Parent support for children with special needs provided by parents of children with special needs.
National organization that provides support to families of children who are deaf or hard of hearing as well as the professionals who help these families. Support is provided by parents of children who are deaf or hard of hearing.
The PEAL Center is an organization of parents of children with special health care needs and disabilities reaching out to assist other parents and professionals. As Pennsylvania’s Family to Family Health Information Center (F2F), PEAL serves all of Pennsylvania. The PEAL Center is also Pennsylvania’s Parent Training and Information Center (PTI) for all of PA.
PEN is a coalition of professionals and parents of children representing a range of disabilities and ages who are committed to serving parents of all special needs children from birth to adulthood.
Hispanos Unidos para Ninos Excepcionales (HUNE) provides bilingual (Spanish and English) training, technical assistance and individual assistance to children with disabilities and their families, as well as professionals that work with children, to improve educational outcomes.
Beginnings for Parents of Children Who are Deaf of Hard of Hearing provides support and information in an impartial manner to parents of deaf or hard of hearing children and to professionals. Information includes communication options, technology choices and school issues.
A coalition of parents and professionals in Illinois working to help children with identified hearing loss and their families has put together information on resources, advocacy, services and support. Though some of this is specific to Illinois there is a lot of good information for all families. Website is also in Spanish.
A great visual and practical aid for parents and families of babies recently diagnosed with hearing loss. Helpful in understanding the steps from hearing screening to diagnosis evaluation to early intervention.
Another good visual for families of children with hearing loss–it shows the process of determining if a child has a hearing loss and the steps to take once a hearing loss is diagnosed. This roadmap is interactive and provides resources for the various steps along the way.
Consider the value of meeting a Deaf adult who really understands what it is like to grow up with hearing concerns. Read about the benefits of meeting and interacting with Deaf adults as well as how to contact members of the Deaf community.