Organizations - PA Early Hearing

Organizations

Alexander Graham Bell Association for the Deaf and Hard of Hearing (AG Bell)

The Alexander Graham Bell Association for the Deaf and Hard of Hearing (AG Bell) provides information, support and training to parents of children with hearing loss and the professionals who care for children with hearing loss. AG Bell promotes listening and spoken the language. Parents can join the state chapter of AG Bell for free.

American Academy of Audiology

The American Academy of Audiology is the world’s largest professional organization of audiologists and provides professional development, education, research and public awareness of hearing and balance disorders in adults and children.

American Academy of Otolaryngology

The American Academy of Otolaryngology-Head & Neck Surgery (AAO-HNS) is the world’s largest organization of specialists who treat the ear, nose, throat and related structures of the head and neck. This website includes a search feature for finding an otolaryngologist (also known as an ENT doctor) in your area.

American Academy of Pediatrics

The American Academy of Pediatrics (AAP) is a national organization of primary care pediatricians and pediatric specialists dedicated to the health, safety and well-being of children from infancy to young adulthood. The AAP provides member education, research, advocacy, policy and clinical guidance, publications, and community-based initiatives to improve the health of children.

American Association of the Deaf-Blind (AADB)

The American Association of the Deaf-Blind (AADB) is a national consumer organization of, by, and for deaf-blind Americans, their families and their supporters.

American Board of Audiology

The American Board of Audiology is an autonomous organization that is dedicated to enhancing audiologic services to the public by promulgating universally recognized standards in professional practice. The ABA encourages audiologists to exceed these prescribed standards, thereby promoting a high level of professional development and ethical practice. The ABA offers a pediatric audiology specialty certification.

American Board of Medical Genetics

The American Board of Medical Genetics is dedicated to the public and the medical profession by promoting and assuring standards of excellence in medical genetics. This website includes a search feature to find a certified geneticist in your area.

American Society for Deaf Children

The American Society for Deaf Children supports and educates families of deaf and hard of hearing children and advocates for high-quality programs and services for these children. They promote full communication access in the home, school and community and believe that language development, respect for the Deaf, and access to deaf and hard of hearing role models are important to assure optimal intellectual, social and emotional development.

American Speech-Language-Hearing Association

The American Speech-Language-Hearing Association (ASHA) is a professional association of audiologists, speech-language pathologists, and speech, language and hearing scientists. The ASHA website includes information for professionals as well as the general public.

Beginnings for Parents of Children Who are Deaf or Hard of Hearing

Beginnings for Parents of Children Who are Deaf or Hard of Hearing provides support and information in an impartial manner to parents of deaf and hard of hearing children and professionals. Information includes communication options, technology choices and school issues.

Boys Town National Research Hospital (Center for Hearing Loss in Children)

The Boys Town National Research Hospital is internationally recognized for clinical service and research into the treatment of children who are deaf or hard or hearing.

Centers for Disease Control and Prevention – Hearing Loss in Children

Centers for Disease Control and Prevention (CDC) website on hearing loss in children. This website has a section for families with information and tools on hearing loss. It also includes a section for health professionals with tools and information on hearing loss including free educational materials to give to patients’ families.

Guide By Your Side of Pennsylvania

Hands & Voices Guide By Your Side of Pennsylvania (GBYS) is dedicated to supporting families and their infants and toddlers who are newly identified with hearing loss by offering them an opportunity to talk or meet face-to-face with a Parent Guide, a trained parent of a deaf/hard of hearing child, who can provide assistance using their personal experience and knowledge.

Hearing Disorders and Deafness

Information on hearing disorders and deafness from the Medline Plus – a service of the National Library of Medicine and the National Institutes of Health. Hearing Loss Association of America The Hearing Loss Association of America (HLAA) is the nation’s leading organization representing people with hearing loss. HLAA provides assistance and resources for people with hearing loss and their families to learn how to adjust to living with hearing loss. Hearing, Speech and Deafness Center The Hearing, Speech and Deafness Center is based in Seattle, Washington and some of the information is specific to that area but there is plenty of good general information for parents of children who are deaf or hard of hearing. Help Kids Hear Help Kids Hear is a website created by parents of 2 hard of hearing children. It contains all kinds of information and resources that parents will find useful in raising their own deaf or hard of hearing children. Just keep in mind that some things may be dated since this website has not been updated recently. John Tracy Clinic The John Tracy Clinic provides free services to parents of children, ages birth to 5 years, who are deaf or hard of hearing. The clinic has more than 60 years of experience in early intervention and the spoken language option. Parent Distance Education courses are offered free of charge in English and Spanish. Joint Committee on Infant Hearing (JCIH) The Joint Committee on Infant Hearing (JCIH) is composed of representatives from the American Academy of Pediatrics, the American Speech Language Hearing Association, the American Academy of Ototolaryngology and Head and Neck Surgery, the American Academy of Audiology, the Council on Education of the Deaf, and Directors of Speech and Hearing Programs in State Health and Welfare Agencies. JCIH makes recommendations on the early identification of children with or at risk for hearing loss as well as recommendations on universal newborn hearing screening. The most recent Position Statement was published in 2007 and can be found on the JCIH website along with all the previous Position Statements.

National Association of the Deaf (NAD)

The NAD is the nation’s premier civil rights organization of, by and for deaf and hard of hearing individuals in the U.S. Information on early intervention and on education can be found under \\\Issues and Resources\\\”. Be sure to click \\\”Information for Parents\\\” on the far right of the Early Intervention and Education pages.”

National Black Deaf Advocates

National Black Deaf Advocates is an advocacy organization for black deaf and hard of hearing people. There is a local chapter office in Philadelphia.

National Center for Deaf Health Research

The National Center for Deaf Health Research (NCDHR) is a leading deaf/hard-of-hearing health organization dedicated to promoting health and preventing disease in deaf and hard-of-hearing populations through participatory community-based research.

National Center for Hearing Assessment and Management (NCHAM)

One of the best websites to learn information about early hearing detection and intervention.

National Center for Medical Home Implementation

Information from the American Academy of Pediatrics on providing a medical home for your patients. Includes tools and resources.

National Consortium on Deaf-Blindness

The National Consortium on Deaf-Blindness provides information, resources, technical assistance and support to families of children with deaf-blindness.

National Cued Speech Association

The National Cued Speech Association supports effective communication, language development and literacy in individuals, families, and children through the use of Cued Speech, a mode of communication that allows users to access the basic, fundamental properties of spoken language through the use of vision.

National Deaf Education Center/Laurent Clerc Center at Gallaudet University

The National Deaf Education Center, of the Laurent Clerc Center at Galludet University, has a wealth of information on the educational, linguistic, social and emotional development of deaf and hard of hearing children from birth to age 21.

National Deaf Education Project NOW

The National Deaf Education Project NOW is a co-partnership of the National Deaf Education Project and Hands & Voices to work toward the development of a quality communication and language-driven education for all deaf and hard of hearing children.

National Institute on Deafness and Other Communication Disorders

The National Institute on Deafness and Other Communication Disorders (NIDCD), one of the National Institutes of Health, supports and conducts research and research training on hearing, balance, smell, taste, voice, speech and language. Families of children who are deaf or hard of hearing, as well as the professionals who care for these children, will find the “Health Info” section of the NIDCD website the most helpful.

Pennsylvania Academy of Audiology

The Pennsylvania Academy of Audiology is a professional organization of university-trained audiologists that provides advocacy, leadership and improved awareness of hearing disorders.

Pennsylvania Chapter, American Academy of Pediatrics

The Pennsylvania Chapter, American Academy of Pediatrics is a membership association that provides information for pediatricians and other primary care physicians who care for children. There is also helpful information for parents and families.

Pennsylvania Department of Health

Information on the various services, resources and programs provided by the Pennsylvania Department of Health.

Pennsylvania Education & Advocacy Leadership Center (The PEAL Center)

The PEAL Center provides information, training and technical assistance to families of children with special health care needs in PA.

Pennsylvania Hands & Voices

Parent support is provided to families of children who are deaf or hard of hearing by parents who have children who are deaf or hard of hearing.   These parents know how to answer your questions, connect you to networks and find the resources you need because they have been there and know what you are going through!

Pennsylvania Office for the Deaf and Hard of Hearing

The Pennsylvania Office for the Deaf and Hard of Hearing (ODHH) provides advocacy, information, services and referrals for Pennsylvanians who are deaf, hard of hearing or deaf-blind and their families and caregivers.

Pennsylvania Training and Technical Assistance Network (PaTTAN)

The Pennsylvania Training and Technical Assistance Network (PaTTAN), an initiative of the Bureau of Special Education, works in partnership with families and local education agencies to support programs and services to improve student learning and achievement. Training, development and technical assistance is provided for professionals. Information and support is also provided for families and students.

Raising Deaf Kids

Raising Deaf Kids is a great website for parents of deaf and hard of hearing children that is in both English and Spanish. It provides a variety of information in a friendly, easy-to-understand format.

Sign Enhancers

Sign Enhancers is the source for American Sign Language and Interpreter Education media (including DVDs, CDs, guidebooks, textbooks, ASL and Interpreter curricula).

Signed Exact English for the Advancement of Deaf Children (SEE Center)

Website with information on signed exact english, a method to communicate with deaf and hard of hearing children. Also includes general information on hearing loss.

The PA Deaf-Blind Project of PaTTAN

The PA Training and Technical Assistance Network (PaTTAN) is part of the PA Dept. of Education and offers publications with information to help families of deaf-blind children.

Western PA Health Information for Deaf, Deafblind and Hard of Hearing

Western Pennsylvania Health Information provides reliable advocacy, social service and behavioral health care information to people who are Deaf, Deafblind and Hard of Hearing in a format that is accessible to all. It also encourages effective communication between healthcare providers and patients by educating about individual perspectives, rights and obligations in the healthcare setting.